Seeing the Difference
  A Project on Viewing Death and Dying in Interdisciplinary Perspective
 
 

Interdisciplinary Resources Related to Death and Dying

Advocacy
End-of-Life Care
Ethics
General Resources
Hospice & Palliative Care
Medical Humanities
Pain Management

 

 

 

Advocacy

Partnership for Caring: America's Voices for the Dying
A national, not-for-profit organization dedicated to increasing the demand for excellent care at the end of life.
http://www.partnershipforcaring.org/

San Francisco Medical Society
Advocates for the interests of San Francisco physicians and their patients in the interest of public health.
http://www.sfms.org/

 

End-of-Life Care

California Coalition for Compassionate Care
Listing of local, community-based coalitions organized around end-of-life issues.
http://www.finalchoices.calhealth.org/04community_coalitions.htm

Compassion in Dying of Northern California
A non-profit organization that provides information, counseling, and emotional support to terminally ill patients.
http://www.compassionindying.org/nca/nca.html

Education for Physicians on End-of-life Care
Information for physicians about the essential clinical competencies required to provide quality end-of-life care. Includes a curriculum, speakers list, and resource guide.
http://www.epec.net/

Innovations in End-of-Life Care
International journal and online forum of leaders in end-of-life care. http://www2.edc.org/lastacts/index.asp

Last Acts
A national coalition to improve care and caring near the end of life.
http://www.ilcusa.org/who/mission.htm

Promoting Excellence in End-of-Life Care
Dedicated to long-term changes to improve health care for dying persons and their families.
http://www.promotingexcellence.org/

 

Ethics

American Society for Bioethics and Humanities
http://www.asbh.org/links/

American Society of Law, Medicine & Ethics
"Where multidisciplinary education tempers practice."
http://www.aslme.org/

Bioethics Information Retrieval Project
Kennedy Institute of Ethics - Georgetown University http://www.georgetown.edu/research/nrcbl/ir/bioline.htm

Biomedical Ethics, Stanford University Center for
http://scbe.stanford.edu/

Bioethics Resources on the Web, National Institutes of Health
Bioethics resources, including education, research involving human participants and animals, medical and health care ethics, and the implications of applied genetics and biotechnology.
http://www.nih.gov/sigs/bioethics/

Hastings Center, The
Explores fundamental ethical questions in medicine and biology within a broad intellectual and social context.
http://www.thehastingscenter.org/

The Johns Hopkins University Bioethics Institute http://www.med.jhu.edu/bioethics_institute/

Journal of Medical Ethics Online
Includes good list of resources.
http://jme.bmjjournals.com/

Midwest Bioethics Center
http://www.midbio.org/

 

General Resources

Cancer Center at Michigan State University
http://www.cancercenter.msu.edu

Commonweal's Institute for the Study of Health and Illness
Provides continuing medical education (CME) workshops for physicians on relationship-centered care.
http://www.commonweal.org/ishi.html

Completing a Life
Resources for people living with advanced illness. http://commtechlab.msu.edu/sites/completingalife/

End of Life: Exploring Death in America
National Public Radio series on death and dying in the U.S. http://www.npr.org/programs/death

GriefNet Bookstore and Bibliography: Professional Resources http://griefnet.org/library/biblio/professional.html

Growth House, Inc.
International gateway to resources for life-threatening illness and end-of-life care http://www.growthhouse.org/

In the Mix: Dealing with Death
Award-winning PBS series talks to teens about how young people grapple with death.
http://www.pbs.org/inthemix/shows/show_death.html

International Longevity Center
Research and education addressing longevity and population aging, with a focus on highlighting older people's contributions to society.
http://www.ilcusa.org/who/mission.htm

Missoula Demonstration Project
Community-based research and public engagement to foster improvement in how people experience dying, caregiving, and death.
http://www.missoulademonstration.org/

"On Our Own Terms"
Bill Moyers explores dying in America
http://www.pbs.org/wnet/onourownterms/

Project on Death in America: Transforming the Culture of Dying
Working to understand and transform the culture and experience of dying and bereavement through initiatives in research, scholarship, the humanities, and the arts, and to foster innovations in the provision of care, public education, professional education, and public policy.
http://www.soros.org/death/index.htm

 

Hospice & Palliative Care

American Academy of Hospice and Palliative Medicine
For physicians dedicated to the advancement of hospice/palliative medicine. http://www.aahpm.org/

American Board of Hospice and Palliative Medicine
Promotes excellence in the care of all patients with advanced, progressive illness through the development of standards of training and practice in palliative medicine. http://www.abhpm.org/

American Hospice Foundation
Supports programs that serve the needs of terminally ill and grieving individuals of all ages. Includes good list of resources.
http://www.americanhospice.org/

California Hospice and Palliative Care Association
Advocates for those facing life-threatening illnesses. Includes good list of resources.
http://www.calhospice.org/

Center to Advance Palliative Care
Resource for hospitals and other healthcare settings interested in developing palliative care programs.
http://www.capcmssm.org/

Hospice Association of America
Information about hospice, including consumer guides, fact sheets, and historical perspectives.
http://www.nahc.org/HAA/home.html

Hospice Cares Online Community
http://hospicecares.org/oc_home.html

Hospice Foundation of America
Promotes hospice care and works to educate professionals and families in issues related to caregiving, terminal illness, loss and bereavement.
http://www.hospicefoundation.org/

National Hospice and Palliative Care Organization
http://www.nhpco.org/

Sutter VNA and Hospice
One of the largest not-for-profit home care and hospice agencies in Northern California.
http://www.suttervnaandhospice.org/

 

Medical Humanities

Department of Medical Humanities, Brody School of Medicine, East Carolina University
http://www.ecu.edu/medhum/

Division of Medical Humanities, University of Rochester, NY
http://www.urmc.rochester.edu/smd/medhum/

Institute for the Medical Humanities, University of Texas Medical Branch, Galveston, TX
http://snapper.utmb.edu/imh/

Medical Ethics & Humanities Center, Duke University
Promotes excellence in scholarship and teaching in medical ethics and the medical humanities. Includes good list of resources.
http://csmeh.mc.duke.edu/

Medical Humanities
Information index on medicine and humanities
http://mchip00.med.nyu.edu/lit-med/medhum.html

Medical Humanities Resource Database, University College London
Educational resources for those interested in using the arts and humanities in medical education and research.
http://www.mhrd.ucl.ac.uk/

 

Pain Management

American Pain Foundation
Online resource center for people with pain.
http://www.painfoundation.org

American Pain Society
Multidisciplinary educational and scientific organization dedicated to serving people in pain.
http://www.ampainsoc.org/

Cancer-Pain.org
Resources for patients and caregivers.
http://www.cancer-pain.org/

International Association for the Study of Pain
Dedicated to furthering research on pain and improving the care of patients in pain.
http://www.iasp-pain.org/

Pain and Policy Studies Group
University of Wisconsin Comprehensive Cancer Center
http://www.medsch.wisc.edu/painpolicy/